Where are physicians with experience in vEDS?

• University of Washington (Dr. Sherene Shalhub, Dr. Peter Byers)

• Johns Hopkins University (Dr. Dietz, Dr. Black)

• Cleveland Clinic (Dr. Heather Gornik of Cardiovascular Medicine, Dr. Sean Lyden of Vascular Surgery)

• EDS Center for Research & Clinical Care in Baltimore, MD

• Advocate Children’s Hospital in Chicagoland (Dr. Brad Tinkle)

• The University of Kentucky (Dr. Mary Sheppard)

• Baylor University (Dr. John W. Belmont. Note: Dr. Belmont is not seeing patients at this time)

• UTHealth (Dr. Dianna M. Milewicz) 

• Texas Children's Hospital (Dr. Shaine A. Morris)

• Colorado VA Medical Center (Dr. Nazli McDonnell)

• Massachusetts General Hospital (Dr. Mark Evan Lindsay) 

• University of Florida (Dr. Tomas Martin, Cardiovascular Surgery)

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Do you know of any other physicians with expertise and experience in vascular Ehlers-Danlos syndrome?  Send us a message with their name and contact information so we can add them to our growing list!