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NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays
In April 2019, an observational study of vascular EDS was published in the Journal of American College of Cardiology (link). The good news i

FIGHT vEDS Team
May 15, 20193 min read


The University of Washington and FightEDS ask patients to set the research agenda
As many of you are aware, FightEDS has been working closely with the University of Washington to further research in vascular Ehlers-Danlos

FIGHT vEDS Team
Jan 31, 20182 min read


Congress Attempts to Alter the Orphan Drug Tax Credit
On November 2nd, 2017 the House Ways and Means Committee released a draft of the Tax Cuts and Jobs Act. The proposal has created a stir...

FIGHT vEDS Team
Nov 13, 20173 min read
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