In April 2019, an observational study of vascular EDS was published in the Journal of American College of Cardiology (link). The good news i

Recent vascular EDS literature estimated the average life expectancy at 51 years(1). While innovative technologies like gene editing and...

When I was first diagnosed, like most people I knew nothing about vascular Ehlers-Danlos. Similarly, many of the doctors who first...

I have a confession to make. I've been diagnosed with vascular Ehlers-Danlos for 6 years, but last month was the first time I met anothe

One of the most challenging aspects of suffering from a rare disease can be the feeling of isolation associated with it. Many patients with

Version 2.0 of FightEDS provides even more information about vascular Ehlers-Danlos syndrome for patients and their familes

As many of you are aware, FightEDS has been working closely with the University of Washington to further research in vascular Ehlers-Danlos

On November 2nd, 2017 the House Ways and Means Committee released a draft of the Tax Cuts and Jobs Act. The proposal has created a stir...

Advice from Benjamin Franklin - how to use prevention and these five tips to better manage vEDS and improve longevity.

Acer Therapeutics Inc., a pharmaceutical company based in Cambridge, MA recently signed an agreement with the Greater Paris University...