In April 2019, an observational study of vascular EDS was published in the Journal of American College of Cardiology (link). The good news i

Recent vascular EDS literature estimated the average life expectancy at 51 years(1). While innovative technologies like gene editing and...

When I was first diagnosed, like most people I knew nothing about vascular Ehlers-Danlos. Similarly, many of the doctors who first...

I have a confession to make. I've been diagnosed with vascular Ehlers-Danlos for 6 years, but last month was the first time I met anothe

As our subscribers saw in our recent post, the University of Washington is hosting a meeting of the vEDS Collaborative on July 27, 2018....